The Pyruvate Kinase Deficiency Community invites everyone from
around the world to participate in celebrating
International PK Deficiency Day December 1, 2022. Our goal is to raise
awareness of the needs and experiences of people living with PK
deficiency, their carers, and family members.
PK deficiency is a rare hemolytic anemia, impacting 3-8 people per million, with a potential prevalence of 50 per million with proper diagnosis.*
*Secrest MH, Storm M, Carrington C, et al. Prevalence of pyruvate kinase deficiency: A systematic literature review. Eur J Haematol. 2020;105(2):173-184. doi:10.1111/ejh.13424.
In 1962, the first peer-reviewed article was published identifying PK
deficiency as a hereditary nonspherocytic hemolytic anemia. In 2022,
it will be the 60th year anniversary of the hallmark publication
identifying this rare hemolytic anemia that has affected many people
around the world for decades. The time has come to recognize the
struggles and triumphs of people with PK deficiency and their families,
along with the advances in treatment, medicine, and technology that
allow us to connect. Let’s make 2022 a year to honor our past and
celebrate the future.
People from the US, Great Britian, EU, and Russia overwhelmingly voted in favor of an International #PyrvuateKinaseDeficiency Awareness Day
People slightly preferred December, which is the month when important PKD-related research was first submitted in the Blood Journal in 1961.
People neither agreed nor disagreed that the turquoise ribbon with red circles reminded them of PKD.
People were willing to engage in an Intl' PKD Awareness Day by voting on a logo and posting to social media.
Email addresses on this mailing list are exclusively for PK Deficiency Day communications and will not be shared with a third-party for any other purpose.
This website was established by Thrive with Pyruvate Kinase Deficiency Organization and content is provided by PK Deficiency community allies.